AbbyStrong Fights NPC
@abbynpc
Richmond, Viginia Non-profit OrganizationsOverview
About AbbyStrong Fights NPC
Abby is a warrior with a brave heart. She and her family live with strength, grace, and unwavering hope in the fight against Niemann-Pick Disease Type C. Joins us and be #abbystrong!
Children across the world have been suffering without treatments approved or cures being developed for terminal dementia for ages. It's incredible almost no one knows about the over 100 rare diseases that lead to childhood dementia and death in over 700,000 children worldwide.
There are very unique challenges that face the NPC and rare disease communities. Challenges that YOU can help with.
We believe that, through education and advocacy for treatment approval, parents will be told their child has a chronic but manageable disease called NPC, and here's what you need to do.
We believe that awareness is key and that our goal should be to join forces together and focus on building a massive and sustained social media presence that will be too hard to be ignored. Please see our socials below and like, follow, and share our content. Invite others to do the same!
Children across the world have been suffering without treatments approved or cures being developed for terminal dementia for ages. It's incredible almost no one knows about the over 100 rare diseases that lead to childhood dementia and death in over 700,000 children worldwide.
There are very unique challenges that face the NPC and rare disease communities. Challenges that YOU can help with.
We believe that, through education and advocacy for treatment approval, parents will be told their child has a chronic but manageable disease called NPC, and here's what you need to do.
We believe that awareness is key and that our goal should be to join forces together and focus on building a massive and sustained social media presence that will be too hard to be ignored. Please see our socials below and like, follow, and share our content. Invite others to do the same!