ALS Care and Support Foundation, India
@als_care_and_support_foundation
New Delhihttp://alslifemanagement.weebly.com/ Non-profit OrganizationsOverview
About ALS Care and Support Foundation, India
We are family of caregivers and patients from ALS community in India
We support, guide and share information on various aspects of patient care starting from sharing personal experiences and learnings, nutrition, operation of various medical devices to tracheostomy care and ICU management at home, Also, we provide critical support and first aid tips during emergencies, day and night, through video calls and save life without the need for rushing to hospital.
We do all this with empathy and compassion for every Person living with ALS (pALS), as ALS is very rare, complex and tough disease, as well as very less doctors are experienced to treat pALS. We conduct regular sessions by expert doctors, therapists, as ALS patients need guidance from multidisciplinary specialist doctors and various therapists like speech therapist, physiotherapist etc, We also generate funds for financially weaker members to help them buy medical equipment, by generously donating selflessly like a family.
ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease become totally paralyzed. They will be needing several supportive medical devices, like wheel chairs, Bipap machines, ventilators, oxygen concentrators, hospital bed, cough assist machines, suction machines etc.
We support, guide and share information on various aspects of patient care starting from sharing personal experiences and learnings, nutrition, operation of various medical devices to tracheostomy care and ICU management at home, Also, we provide critical support and first aid tips during emergencies, day and night, through video calls and save life without the need for rushing to hospital.
We do all this with empathy and compassion for every Person living with ALS (pALS), as ALS is very rare, complex and tough disease, as well as very less doctors are experienced to treat pALS. We conduct regular sessions by expert doctors, therapists, as ALS patients need guidance from multidisciplinary specialist doctors and various therapists like speech therapist, physiotherapist etc, We also generate funds for financially weaker members to help them buy medical equipment, by generously donating selflessly like a family.
ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease become totally paralyzed. They will be needing several supportive medical devices, like wheel chairs, Bipap machines, ventilators, oxygen concentrators, hospital bed, cough assist machines, suction machines etc.