Annabelle's Challenge Vascular EDS Charity
@annabelle's_challenge
Bury, Englandhttps://www.annabelleschallenge.org/ Non-profit OrganizationsOverview
About Annabelle's Challenge Vascular EDS Charity
Annabelle’s Challenge aims to promote awareness and medical research into the rare, life-threatening and incurable genetic condition vascular Ehlers-Danlos Syndrome (vascular EDS).
We work closely with the EDS National Diagnostic Service, a highly specialised service commissioned by NHS England with clinics based in Sheffield and London.
Thought to affect around 740 people in the UK, vascular EDS is a connective tissue disorder and means patients are at daily risk of their internal organs and arteries spontaneously rupturing.
To help raise the profile of vascular EDS, Annabelle's Challenge hosts the global awareness campaign REDS4VEDS Day which takes place every year on the third Friday of May.
The charity is also proud recipients of The Queen's Award for Voluntary Service, the MBE for volunteer groups.
We work closely with the EDS National Diagnostic Service, a highly specialised service commissioned by NHS England with clinics based in Sheffield and London.
Thought to affect around 740 people in the UK, vascular EDS is a connective tissue disorder and means patients are at daily risk of their internal organs and arteries spontaneously rupturing.
To help raise the profile of vascular EDS, Annabelle's Challenge hosts the global awareness campaign REDS4VEDS Day which takes place every year on the third Friday of May.
The charity is also proud recipients of The Queen's Award for Voluntary Service, the MBE for volunteer groups.