Asociación Española Síndrome KBG
@asociaci_nespa_olas_ndromekbg
Madrid y alrededoreshttps://kbgsindrome.org/ Non-profit OrganizationsOverview
About Asociación Española Síndrome KBG
The place where KBG families meet and work together to achieve solutions.
KBG Syndrome Spanish association was created in 2021 by a group of KBG syndrome affected members with the following goals;
- Promote the connection between KBG families, and professionals in order to coordinate efforts to get solutions
- KBG Syndrome social and governmental awareness
- Promote research about KBG Syndrome
- Cooperation with other entities what would be related to KBG and rare diseases
- International cooperation with KBG related organizations
- Improve the life of KBG Syndrome people in all areas
The Spanish KBG Syndrome association is an important support for KBG people and families. We work to improve awareness and scientifical research.
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KBG Syndrome Spanish association was created in 2021 by a group of KBG syndrome affected members with the following goals;
- Promote the connection between KBG families, and professionals in order to coordinate efforts to get solutions
- KBG Syndrome social and governmental awareness
- Promote research about KBG Syndrome
- Cooperation with other entities what would be related to KBG and rare diseases
- International cooperation with KBG related organizations
- Improve the life of KBG Syndrome people in all areas
The Spanish KBG Syndrome association is an important support for KBG people and families. We work to improve awareness and scientifical research.
-